We really would not make it through this horrid crisis without you. Every word of encouragement, every email, every hug gives us the strength to hang on for one more moment. The outpouring of love for Lucia and the generosity and support for our family (although not surprising since you guys have never waivered) is so touching.
We are taking it day by day, minute by minute. It's very hard right now to talk about 'hope for the future' but as I've mentioned before, the LuciaGirl Pediatric Foundation (LGPOF) will be an avenue for those of us who refuse to live without a little bit of Lucia in our lives.
All legal business mombo jombo have been filed to obtain nonprofit status and as it stands right now there will be 2 branches of focus. I'll describe them in detail at a later time but for now just think "Poop and Fart."
1) F.A.R.T. - The Funds and Research Team
2) P.O.O.P. - Parents of Oncology Patients
You must wonder why the preoccupation - well, Lucia, as many of you know, loved fart humor and while in treatment at the hospital the fabulous clowns really got to know her and realized that this was the way to make her laugh.
One particular clown that she was extremely fond of even dressed up as a giant whoopee cushion when he came to visit!
She also had a gag fart machine that worked via remote control so when the doctors came to ask questions, instead of answering she would keep a straight face and push the fart button under her blanket.
So...since this is the LuciaGirl Foundation it has to be in keeping with the one, the only LuciaGirl.
The adults board members have yet to be finalized but the kids division board members are already in action. Take note, these kids are going to change the world.
(That's Lucia baby in the middle-first playdate after the brain surgery. She really enjoyed this day, she really missed you guys.)
When not to Fart.
1. In a crowded elevator
2. On a crowded bus
3. In a public library
4. While on a date
5. While giving a speech
6. In church
7. In a crowded classroom
8. In your office when you're alone - someone's bound to walk in immediately afterwards
9. In a movie theater
10. In your car before picking up a family member
*All donations can be made out to LuciaGirl Pediatric Oncology Foundation (LGPOF) - Thanks
